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Arizona Cancer Registry

Special Studies

The ACR participates in the Arizona Melanoma Task Force (AMTF) to improve the completeness of melanoma reporting in Arizona. The AMTF consists of local dermatology societies; the University of Arizona's College of Public Health and Arizona Cancer Center; hospitals; the ACR and others.

To control melanoma's impact, the AMTF has mapped the root causesPDF to these problems:

  • There are more melanomas diagnosed than get reported in AZ;
  • Too few melanomas are diagnosed early (i.e., as melanoma in situ and local stage lesions);
  • Arizonans receive too much U.V. radiation, leading to melanomas that are preventable.

The Arizona Cancer Registry (ACR) is involved with research studies in Arizona. The studies have been approved by the ADHS Human Subjects Review Committee. The registry is currently providing data, subject recruitment and technical assistance to these research groups. A summary of each study is provided below.

Melanoma Reporting
Current ACR Studies
  • Hodgkin Lymphoma
    The ACR is conducting a survey of patients first diagnosed with HL 3-5 years ago. The survey seeks patients' perspective concerning their access to follow-up care since completing their treatment. In November 2013 the ACR sent letters to doctors informing them that ACR would be conducting the survey. In December 2013 ACR sent customized letters directly to Arizona HL patients inviting them to take the survey (on a secure site using SurveyMonkey.com). If you have received an invitation letter from the ACR, we urge you to participate as your collective responses will help identify the experience and the needs of similar patients.
ADHS Reports
NPCR Data Completeness and Quality Audit of the Arizona Cancer Registry
  • Data Completeness and Quality Audits: Arizona Cancer Registry
    This technical report details the results of the case completeness and data quality audit that was conducted by the National Program of Cancer Registries on the ACR in February, 2009. The audit estimated the ACR’s case completeness rate to be 95.6%, above the national standard of 95%. The data accuracy rate was 95.3%. The report also identifies and describes potential casefinding and coding problem areas that may provide valuable reference points for anyone looking to perform data quality reviews.
Sierra Vista Childhood Leukemia Studies

Note: Information provided in PDF files.