Office of Newborn Screening

Information for Parents

Some babies affected with CCHD can look and act healthy at first, but within hours or days after birth they can have serious complications. Pulse oximetry newborn screening is a non-invasive test measuring how much oxygen is in the blood. It can help to identify babies that may be affected with CCHD before they leave the newborn nursery. If detected early, CCHD can often be treated and infants can Read our CCHD Implementation Timeline and a statement from the Assistant Bureau Chief Ward Jacox.

The Newborn Screening Story: How One Simple Test Changed Lives, Science and Health in America, published by the Association of Public Health Laboratories (APHL), covers the origins, science, importance and future of Newborn Screening.

With the right information, you can provide the best start for your baby's health. Did you know that over 90,000 babies are born in Arizona each year? Most of them are healthy but some have a rare and serious disease or hearing loss. Testing and early detection of these disorders is important for all babies. Early treatment can prevent or minimize serious symptoms like growth problems, brain damage and even death. Check out our flyer for an overview of the program in English and Spanish.

Critical Congenital Heart Defects (CCHD) Resources

Some babies born with a heart defect can appear healthy at first and can be sent home with their families before their heart defect is detected. Learn more from the CDC. [Español]

Arizona Stories

A few Arizona families have shared their stories about Critical Congenital Heart Defects (CCHD) Read about them to learn more about living with the disease.

Resources for CCHD

NewSTEPS, a program within the Association of Public Health Laboratories (APHL), assists states in the implementation of new disorders by providing a centralized location for tools and resources for public health programs, providers and families.  Learn more about this program on their website.

Videos for Parents
Support Groups for Families